tag:blogger.com,1999:blog-61471008143770649122024-02-07T11:27:13.163+00:00Tamiflu OverdoseMy daughter Olivia had overdose/incorrect dose of Tamiflu on 21st July 2009. She was prescribed 30mg but received 75mg which is 2.5 times the dose, twice daily for 5 days. She's been suffering neurological problems since.
The dosage on the 75mg Tamiflu Patient Information Leaflet has been revised. If this had been done previously then Olivia wouldn't have been overdosed as I read the leaflet so many times.
I am trying to trace anyone else who has had a similar experience with Tamiflu.Donnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.comBlogger80125tag:blogger.com,1999:blog-6147100814377064912.post-88504853999728057802012-06-13T21:45:00.000+01:002012-06-13T21:45:57.308+01:0013 June 2012<br />
<br />
How can it have been so long since I last posted?? Well it's great really.<br />
<br />
I haven't been on her to update that we saw Olivia's Paediatrician the other week and he's agreed for us to bring her off her anti-epileptic medication, woohoo!! He was going to either leave her on her existing dose or increase it as per her current weight and Alex asked if we could try taking her off it.<br />
<br />
I didn't think Olivia's Paediatrician would want to go for that as previously we'd been told it would be a year or two after her last seizures but he told us the risks (mainly that she may end up on a higher dose to get things back under control than she was on) and we decided between us to give it a try as she's been so well for so long.<br />
<br />
We've got to drop 10mg every 2 weeks. She was on 40mg twice a day and is currently on 20mg twice a day and so far so good. We've heard her stutter a few times and we're keeping an eye on it, nothing bad and only a few times so she may just be tired.<br />
<br />
It'll be so lovely for her not to be on medication anymore and it's very hard to remember how things were when they were bad.<br />
<br />
Thanks<br />
<br />
DonnaDonnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com5tag:blogger.com,1999:blog-6147100814377064912.post-5534708822443633632012-01-06T12:55:00.000+00:002012-01-06T12:55:09.299+00:006 January 2012Woohoo, Olivia's absolutely fine so guess she was just overtired or something. So pleased. Maybe we can start to believe she's okay now.<br />
<br />
Doubt we'll ever stop being paranoid though :-)Donnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com1tag:blogger.com,1999:blog-6147100814377064912.post-72984421118354788772011-12-19T13:13:00.000+00:002011-12-19T13:13:38.370+00:0019 December 2011Wow, I can't believe it's so long since I last updated which is always a good sign. Olivia's been doing so well for such a long time now. We've seen an odd absence and a few moments where we think "oh no is it happening again" but nothing has come of it which is fantastic.<br />
<br />
We saw Olivia's Paediatrician the other week and he's really pleased with her. He was wonderful and gave us the option of whether to up her dose (as she's gained weight) or leave it as it is for now as she's doing so well. We chose to leave it as it is and he said we can always up it quickly just by ringing him so that's good to know. It'll just be nice if she's weaned down naturally.<br />
<br />
The reason I'm on here though is she's been acting unusual for the last few days. Alex and I have both been saying we're not sure if things are going on or is she just tired or excited so I thought I should put it on here in case we're still thinking this way in a weeks time.<br />
<br />
Olivia's getting hysterical about things which she wouldn't normally get upset about like screaming when music is playing (she loves listening to music), not liking noise, saying she wanted pizza for school then crying her eyes out that she doesn't want it. Laying down and not wanting to be touched. Writing her name backwards. Slow speech (searching for the words).<br />
<br />
I must ask her to do a drawing to see what that's like.<br />
<br />
Hopefully it's nothing. We'll keep a particularly close eye on her next week while we're off and let her Paediatrician know if we think her dose needs changing. I don't think there's enough to go on yet.<br />
<br />
DonnaDonnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-4843229885294026732011-06-17T10:48:00.000+01:002011-06-17T10:48:36.890+01:0017 June 2011Olivia's been fine for a few weeks. She's been to speech therapy for the last 2 weeks and the therapist has done some formal assessments of her development so we've got something to compare to when she's not very well. She's also trying the technique for stammering to see if it'll help Olivia. She's not convinced it will help and neither is the Paediatrician as it's not a normal stutter but we can at least try.<br />
<br />
Olivia has had 2 afternoon story times at school. She wasn't overly impressed the first week but loved the 2nd and keeps asking when she can go again so we're really pleased.<br />
<br />
She's woken in the night screaming again the last 2 nights and has a mild stutter yesterday so I'm hoping this isn't a sign of a dip again.<br />
<br />
Olivia keeps getting pins and needles in her feet. She cries and says her feet are fizzing. I mentioned it to the Paediatrician but he doesn't think there's any relevance.Donnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-15369599046882994852011-05-11T07:04:00.000+01:002011-05-11T07:04:31.093+01:0011 May 2011We saw Olivia's Neurologist on Wednesday. She asked us loads of questions about Olivia's history as we hadn't seen her before. She said it's definately epilepsy and she believes it's Electrical Status Epilepticus of Slow-wave sleep (ESES) which is a rare epilepsy syndrome. It seems to get merged with CSWS and Landau Kleffner in a lot of the information on the internet so I'm finding it hard to find information that's specific.<br />
<br />
She wants Olivia to have another 24 hour EEG but she said it needs to be when Olivia's bad as previously it's when she's been okay. We're seeing her again in 4 months.<br />
<br />
Olivia's stutter has been terrible this time. We were on holiday so I managed to get some film of her. It was really getting to her and one evening she was stuck on the word "not" and said it over 20 times and eventually put her hand in front of her mouth to try and stop herself. Then she said "I not like my silly voice" and her lip was trembling and she was fighting back tears. It broke my heart to see her so upset.<br />
<br />
It seems to be going again not. We're mainly only seeing it in the evening. This time Olivia certainly wasn't as bad as last time with regard to memory loss etc.<br />
<br />
Thanks<br />
<br />
DonnaDonnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-45168193219716157262011-04-20T22:55:00.001+01:002011-04-20T22:56:42.187+01:0020 April 2011Hi<br />
<br />
We saw Olivia's Paediatrician today and I mentioned to him about Landau Kleffner Syndrome (LKS). He thinks Olivia's symptoms fit and has sent an email to the Neurologist to point her in that direction ready for Olivia's appointment on 4th May. It's a rare type of epilepsy and fits well with Olivia's speech and other things coming and going.<br />
<br />
Her stutters been quite bad the last couple of days and this evening Grace showed Olivia a few flash cards and she didn't know them all yet last week she did. I thought this one wasn't going to be as bad as last time but I'm now wondering how the next few days will go.<br />
<br />
I've added a small clip to show Olivia's speech when she struggles to get the words out.<br />
<br />
<br />
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<br />
<div class="separator" style="clear: both; text-align: center;"><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dzS1N8hQbcQSbh-nj-SffrUs1VAHdBYiDTX0mpqhbqhogt6teSfm1p_Us3qxuA5xStifzfAUKh72rCFlQv9Wg' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div><br />
I've added a small clip to show Olivia's speech when she struggles to get the words out (please excuse the mess, we were given a load of toys/games).<br />
<br />
DonnaDonnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-7222197763988820952011-04-12T09:45:00.000+01:002011-04-12T09:45:08.859+01:0012 April 2011Olivia's still not right. She's been having bad dreams again and gets so frightened she won't go back to sleep. She had a few last night so will be tired today.<br />
<br />
Her speech is still about the same. She's stuttering, hesitating alot and struggling to find the words. She's been talking slowly aswell.<br />
<br />
She keeps getting angry too. Not really bad but not like her at all. She's usually so placid.<br />
<br />
I've found a condition on the internet which sounds so right for what happens to Olivia. I don't know whether to mention it to the Paediatrician as I know they don't like people diagnosing from the internet. We've got Olivia's Paediatrician's appointment on 20th April and the Neurologist on 4th May so not long but what's the odds she'll be fine when we see the Neurologist!!Donnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-62614429562167930972011-04-06T14:06:00.000+01:002011-04-06T14:06:24.853+01:006 April 2011Unfortunately despite Olivia being so well and her speech returning perfectly, she's showing signs of problems again. She's forgetting words, gets stuck on sentances where she repeats the first few words over and over before she can get the rest out. Other times she repeats parts of a word or the whole word.<br />
<br />
She's getting frustrated with things quickly. She's having absences. She's incredibly cuddly with everyone including the animals. We keep finding her laying on the floor and she doesn't want to be touched.<br />
<br />
She's not bad but at least we know categorically now that this is something that comes and go's. Now to find out what!!<br />
<br />
DonnaDonnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-71951944329813240842011-02-21T13:40:00.000+00:002011-02-21T13:40:38.286+00:0021 February 2011Oops it's been a while again! Olivia had her Sleep Deprived EEG on Friday 11th Feb. We had to keep her up until 10pm and wake her at 4am. She had to stay awake until her EEG at 11am in Southampton which she did and once the wires were attached she fell asleep which was just what they wanted. She did brilliantly, bless her.<br />
<br />
The only unfortunate thing is that Olivia has been really alert and with-it since the week before so I'd be surprised if it'll show anything.<br />
<br />
Over the last couple of weeks her speech and memory has improved dramatically, even week to week you can see the difference. She's now using her connecting words (saying "duh" for "the" but that's normal) and knows her colours and what things are called.<br />
<br />
She did have a long absence this morning though (hence why I've even thought to come on here). Grace noticed and called me and was frantically waving her hands in front of Livvie's eyes. She said she could tell when she walked in to the room and looked at Olivia as she was staring. She then tried to get her attention, then called me and when I went up to Olivia I could see she wasn't focusing or responding to us. I asked if she was okay a few times then she was back with us. It didn't seem to bother her but she was quite quiet afterwards.Donnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-88026560800703958132011-01-21T15:48:00.000+00:002011-01-21T15:48:54.595+00:0021 January 2011We went to see Olivia's Paediatrician on Wednesday as she's had a couple of small issues over the last couple of weeks. The Sunday before last her stutter was dreadful. It hasn't been like that for a long time and she really couldn't talk. It's been coming and going since.<br />
<br />
Her absences have been seen a few times too but not so much in the last week.<br />
<br />
We're worried about her development. Her speech is like a toddlers (although we're sure it was better before) and our childminder told us she's concerned too. Olivia's not using any connecting words (the, and etc) and can't remember alot of words such as kettle, tv, handle, ladder. She's not so good naming colours and numbers either and is easily confused.<br />
<br />
The Paediatrician asked Olivia some questions then said he's going to refer her to the Paediatric Neurologist and also request a sleep deprived EEG. All this should happen within the next 3 months. He said he's going to write to the Neurologist to ask if he can think of anything rare that could be mimicing epilepsy as he said it's a strange case and he's not convinced it's epilepsy.<br />
<br />
So basically we now feel like we're back at the beginning diagnosis wise, although Olivia's much better than she was. He also said she's at the top end of the Lamictal so he doesn't want to increase it.<br />
<br />
DxDonnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-75034066940243910522010-11-22T21:05:00.000+00:002010-11-22T21:05:38.917+00:0022 November 2010Okay we've finally come to the decision to up Olivia's Lamictal. We're going to up her dose by another 5mg twice daily.<br />
<br />
Then way we can see what she's like in 2 weeks and then I'll phone her Paediatrician if she's still not any better.<br />
He said if things don't improve after this increase he will request another EEG not that I imagine it'll show anything.<br />
Fingers crossed this increase will stop her seizures.<br />
DonnaDonnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-32794188064256857212010-11-21T21:41:00.001+00:002010-11-21T22:00:51.259+00:0021 November 2010Well we upped Olivia's dose by 5mg twice daily and initially it looked like it had helped but we're noticing occurrences almost daily at the moment, mainly absences, confusing/forgetting words and falling over but a couple of days ago our childminder wasn't able to rouse her in the buggy (last year before her seizures were controlled her eyes would roll and then she would to pass out for a few minutes) and when she woke up she couldn't stand up for a while and was really unsteady after. Alex was there by then and all evening she said she was tired.<br />
<br />
<br />
Yesterday she seemed really bright but today she's been awful since she woke up. <br />
<br />
When she woke up she went to see Grace then after a few minutes went and stood on the landing. She kept shaking her toy rabbit but wouldn't respond to us calling her. This went on for ages and then she laid curled in a ball on the floor and was groaning. I told Alex I didn't think she was right and went and picked her up.<br />
<br />
I sat her on our bed and asked if she was alright and she was talking but it was slowed down. She talked some gibberish mid sentence then talked slow motion again.<br />
<br />
Later in the day we went out for a meal and whilst she was sat with all the children at the table she had an obvious absence.<br />
<br />
I think we need to up her dose again but at the same time I'm loath to do it. I just keep hoping it'll go away which is stupid.<br />
<br />
DonnaDonnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-71671778327265608392010-11-04T22:20:00.000+00:002010-11-04T22:20:36.465+00:004 November 2010Olivia fell over earlier. Unfortunately I only saw her out of the corner of my eye so I don't know what happened (she is falling over more often again whereas she wasn't) and I picked her up and cuddled her. We were near the kettle and she said "mummy what's that called?". She keeps doing it after something has happened.<br />
<br />
<br />
DonnaDonnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-81153665136613449852010-11-02T17:54:00.001+00:002010-11-02T18:30:46.390+00:002 November 2010Yesterday she was sitting on my knee watching tv when she started heavy breathing. She then started blinking far too often and her mouth was twitching at one side (this is something which seems to happen when she has some seizures). Her head was in the direction of the tv but her eyes looked like they were flitting all over the place.<br />
<br />
I told the Paediatrician the different things she's been doing and he said we should up her Lamotrigine 5mg twice daily and leave it for the next 2 weeks to see how she goes. If her seizures stop then we leave it at that dose, if not we up it again by 5mg twice daily. <br />
<br />
He said we should have a plan for if the above doesn't work so if that happens he wants Olivia to have another EEG, then maybe try another drug.<br />
<br />
He wants to see her on 5 Jan, 2 months rather than her usual 3 as things aren't right.<br />
<br />
I asked about her immunisations. He said it may cause her to have more/stronger seizures as she is likely to have a raised temperature and be under the weather from the jabs but there's no proof to say that it will worsen or prolong her seizures after the initial few days. He said obviously if she were to get ill from the actual diseases then she could be worse.<br />
<br />
DxDonnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-22936901872328173912010-10-30T22:21:00.000+01:002010-10-30T22:21:24.799+01:0030 October 2010I didn't take Olivia for her jabs after all. I spoke to our Doctors surgery and they advised speaking to Olivia's Paediatrician about her vaccinations as there are a lot in one go, in each arm.<br />
<br />
Unfortunately she's not doing so well either now so I guess it's just as well I didn't go ahead with the jabs or I'd have thought it was due to that.<br />
<br />
For about 3 weeks now she's been staring again. Not very often but she's definately been doing it. In the car the other day she was staring and opening and closing her mouth but without purpose.<br />
<br />
Yesterday she opened the fridge door and just stood there motionless staring.<br />
<br />
The other day she kept looking at the tv then at our big photo on the fireplace, then back at the tv. This continued for a while until she asked "is that the tv?" (pointing at the tv) and I said yes and she said "is it called tv?". She was really confused.<br />
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She's also falling over more often again and her stutters been worse for a while.<br />
<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgriltLTnBEhmChL9MwLgOhIjAkbS5WaYvMwoN6OHSgDLyroFcaaczn8tydFspyT69FeyQ1MbIorvGkOaZooeP5eP6H4uxM1tUgPg10ZQWoGHFBMvT9QOH1mx2mrzHXxYy1sMmnTuGjfRAj/s1600/img_4992.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" nx="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgriltLTnBEhmChL9MwLgOhIjAkbS5WaYvMwoN6OHSgDLyroFcaaczn8tydFspyT69FeyQ1MbIorvGkOaZooeP5eP6H4uxM1tUgPg10ZQWoGHFBMvT9QOH1mx2mrzHXxYy1sMmnTuGjfRAj/s320/img_4992.jpg" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPcXwk3tbOhr8n6pNNpEGubKS40Itm0WfOHZy86_Jv1KWLODKujH0K3lNdf3FO8nx5bprG1m17CtpdNzoHAmK4ic_OSoQr1N9S_soIUNa_logocwA1Z8xKYZ5mbiw8UTbMEQPYD4NguekA/s1600/img_5002.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" nx="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPcXwk3tbOhr8n6pNNpEGubKS40Itm0WfOHZy86_Jv1KWLODKujH0K3lNdf3FO8nx5bprG1m17CtpdNzoHAmK4ic_OSoQr1N9S_soIUNa_logocwA1Z8xKYZ5mbiw8UTbMEQPYD4NguekA/s320/img_5002.jpg" width="213" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgEPXyD_rJXzXIfksi-0r4Jmcu4hyphenhyphenJLGk7zV6rlN_6yJlJu7XfjKinJgfTaG61gwS2jlD1AJ4AcQ-BV82ykCqeLMErV7RIHrj0LL4wjiNEy2_SMeN18ycdlkcn-F54Iq07jjePtpYWM01p/s1600/img_5010.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" nx="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgEPXyD_rJXzXIfksi-0r4Jmcu4hyphenhyphenJLGk7zV6rlN_6yJlJu7XfjKinJgfTaG61gwS2jlD1AJ4AcQ-BV82ykCqeLMErV7RIHrj0LL4wjiNEy2_SMeN18ycdlkcn-F54Iq07jjePtpYWM01p/s320/img_5010.jpg" width="320" /></a></div>I've added these photo's to show the difference between Olivia as she is normally and the last photo shows her when she's drifted off. I snapped it but wasn't sure it would show how she loses her expression and her eye's aren't focused. <br />
We're seeing her Paediatrician on Tuesday so hopefully he'll up her meds and stop this before it gets any worse.<br />
<br />
DonnaDonnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-17222587615518825382010-09-08T10:53:00.000+01:002010-09-08T10:53:38.600+01:008 September 2010Olivia's still really well. So many people are noticing how full of beans she is now.<br />
<br />
I've got to take her for her MMR next week and I suddenly wondered this morning if it could set her seizures off again. Since she's been so well for so long it would be dreadful but at the same time you have to give them the vaccinations as the illnesses themselves could cause her problems.<br />
<br />
Please please let her be okay!!<br />
<br />
DxDonnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-20548859709578767242010-07-28T12:49:00.000+01:002010-07-28T12:49:37.636+01:0028 July 2010Olivia is amazing!! She's so full of life and has not been having any symptoms.<br />
<br />
She's got to continue on her epilepsy medication for 2 years but she's back with us properly and that's all we care about. She showed off in front of her Paediatrician and knew her colours, could do jigsaws etc which she hasn't done when we've been there previously.<br />
<br />
She's so funny and an absolute joy.<br />
<br />
Thanks for taking the time to read my posts and for following Olivia's journey.<br />
<br />
Donna xDonnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-22246103104251571072010-06-18T13:45:00.000+01:002010-06-18T13:45:47.982+01:0018 June 2010For the first time since July last year when all this started Olivia is 'with it'. She's singing songs, learning her ABC's and remembers her numbers alot more. She's got her great sense of humour back and doesn't sit still for a second not to watch anything or have a story.<br />
<br />
She's been having some dramatic age appropriate tantrums and is pushing boundries constantly.<br />
<br />
Please let it continue!!!Donnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-27750147217350438432010-06-02T16:47:00.000+01:002010-06-02T16:47:36.914+01:002 June 2010I'm sorry!!! I'm dreadful at updating this blog now.<br />
<br />
On 9th February I emailed the Hampshire PCT to instigate an investigation by them as I was advised by a very helpful person that they deal with things from a different angle than the Royal Pharmaceutical Society. One of the main things to come out of it was they said the Pharmacist's statement that his stock records tallied was not true. I've given the Pharmacy Inspector a copy of the letter stating that as this was his strongest evidence.<br />
<br />
We had a meeting with the Pharmacist to go through what we believed happened and get his response. He showed us copies of other prescriptions issued that day (obscuring patients details of course) and there were several 75mg issued the same day as Olivia's so yet again we said that surely there was the chance that he could have given someone else the 30mg and Olivia the 75mg.<br />
<br />
We asked to see the boxes of the 30mg & 75mg and both Alex and I knew straight away which we'd been given (not that there was any doubt from our point of view anyway but it all helps us to know to carry on the fight).<br />
<br />
He showed us where the Tamiflu was stored and basically it was a cardboard box on the floor with loads of other stuff piled on top. The room they were in was an absolute mess.<br />
<br />
He said that he now has a mark against his name but I said that MORE IMPORTANTLY our daughter is no longer the same child she used to be and we'd all been through hell!!!<br />
<br />
The Pharmacy Inspector came and took another statement from me and Alex (independently) based on our visit to the Pharmacy. We've not heard any more about the case but we do know that nothing is ever going to come of this but at least I know I've done my best to try to get justice for Olivia.<br />
<br />
Anyway an update on Olivia. She's still having absences, stuttering occasionally and forgetting obvious words like toothbrush for example. She can still be unsteady on her feet (bearing in mind she's 3 yrs & 3 mths) and won't walk very far at all.<br />
<br />
We saw the Paediatrician in March and he wanted to leave her medication as it was as she's not bad compared to how she was at the later part of last year and he said the medication can have some horrible side effects so it's getting the balance right.<br />
<br />
We're seeing him again at the end of this month and the Neurologist next month. I've already started making a list of questions to ask the Neurologist about some of Olivia's behaviour, like not walking far.<br />
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I will try to update more often :-)Donnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-22435736017915369262010-02-09T06:49:00.001+00:002011-01-21T15:42:01.978+00:009 February 2010I had a call from the Pharmacy Inspector a couple of weeks ago to say that the Pharmacist is saying now that he hasn't made a mistake. I'm fuming!!!!! We were told the fact he'd made the mistake wasn't being disputed and now 5 months down the line he's managed to find that his stock records tally!!! I've a right mind to go and see him and tell him exactly what we've been through to make him see what he did!!!<br />
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All we ever wanted was an apology. I told the inspector that from the start. We knew we'd never be able to prove that the overdose has caused all of Olivia's problems. <br />
The inspector said that as we haven't got the packet, it won't go to a Tribunal so basically he's gotten away with making a huge mistake. Apparently she's had words with him but then he's made that other mistake since then with labelling the box up with the wrong strength so he clearly doesn't take any care.<br />
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I hate people who lie! If you make a mistake then put your hands up and say you've made a mistake.<br />
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Anyway, sorry about that big rant. Olivia's still okay. She's been having some staring episodes since the end of last week and I'm wondering if I should tell the Paediatrician so he can adjust her dose before things kick off again. He did say the absences are to be watched. The trouble is we keep kidding ourselves that she's daydreaming :-(Donnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com1tag:blogger.com,1999:blog-6147100814377064912.post-92157291054266230542010-01-22T06:46:00.001+00:002010-02-09T06:41:00.023+00:0022 January 2010Touch wood Olivia's still fine. I'm taking her to the Doctors on Saturday as she's been limping. She did do this when she wasn't well on and off but we put it down to all the strange things she was doing but maybe it wasn't related. She's not got any pain, just can't walk properly.<br />
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I can't believe I haven't written that I'm persuing the Tamiflu/Epilepy line still. On many of the Epilepsy sites people are saying that they'd been seizure free for years and then took Tamiflu and started having seizures which has knocked them for six.<br />
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Could there be a link here with the fact that Olivia developed Epilepsy after taking the overdose of Tamiflu? I'm going to carry on exploring this.Donnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-1674169844244415112010-01-15T23:57:00.000+00:002010-01-15T23:57:58.537+00:0015 January 2010We took Olivia to the hospital on Tuesday. The Paediatrician was pleased to hear she'd been so well. He said to keep her on the same dose of Lamotrigine but has stopped her Epilim as she was on such a small amount.<br />
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We asked if they're likely to try reducing her medication but he said no. She's got to be seizure free for 2 years. I asked if that just ment the passing out ones etc rather than the absences but he said they count too as they alter her speech, concentration, movement etc. I was quite surprised as all though I'd been worried about them in the beginning they were nothing compared to the other types and we don't pay much attention to them.<br />
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She's still be really well (touch wood!!) and it's fantastic.Donnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-26994344701488589082010-01-06T13:00:00.000+00:002010-01-06T13:00:33.252+00:006 January 2010I'm pleased to say that during our holiday to Florida Olivia's got better and better. We got back on New Years day and the following 2 days we noticed how well she was. She keeps sounding so cute when she talks and the things she's saying. We believe she's back to normal.<br />
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She's had a few absences but that's all, thank goodness. I've been a bit scared to say it as that tends to be when things go wrong again.<br />
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We've truely got Olivia back as she was. We've got an appointment with her Paediatrician on 12 January so we'll see whether he reduces her medication or leaves it alone for the time being.Donnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-63920087921877523242009-12-19T01:21:00.000+00:002009-12-19T01:21:07.629+00:0019 December 2009Whoops!! I didn't realise it had been so long since I last updated my blog.<br />
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Olivia's been okay. She's been having some absences but no passing out seizures or falling on her face which is great news. She's been quite dazed this last couple of weeks but no specific things to mention.Donnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0tag:blogger.com,1999:blog-6147100814377064912.post-9086307857656312162009-12-10T09:48:00.001+00:002009-12-12T09:40:13.984+00:0010 December 2009Poor Olivia's got a sore throat and cough. She wasn't too bad yesterday and got better throughout the day but this morning she was looking pretty rotten. She tried to eat her breakfast and cried because it hurt to swallow.<br />
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She had quite a long absence sat on my bed this morning so I hope she'll be okay today. It was an unmistakable one.Donnahttp://www.blogger.com/profile/10974913516301979957noreply@blogger.com0