17 November 2009

We saw the Neurologist on Tuesday.  He did say different things than the Paediatrician.

He says Olivia has Epilepsy which we'd always been told it wasn't.  He's increased her Lamotrigine to 25mg twice daily which is quite an increase from 10mg twice daily.  Apparently we need to watch out for a rash as it can be life threatening and there's more chance of it happening if you're taking Valproate (which Olivia is) and if you have a significant increase in the dosage, although it is rare.

We asked him about the Tamiflu and he said it wasn't much of an overdose and there is a margin built in to the dosage.  We left him with some papers which have been published in the Lancet backing up problems with Tamiflu and a letter from a Japanese Professor I've been talking to who has studied the adverse effects of Tamiflu and believes Olivia's problems are connected to her overdose.  So fingers crossed he'll read it all and agree.

Olivia had a pass-out (wish we knew the names for these things) seizure on Tuesday on the way back from seeing the Neurologist in the car.  She was making a groaning noise for a while then went.  She woke up a few minutes later.