2 September 2009

Olivia's not quite so bad today although she woke up screaming and sobbing and kicking her legs. She wouldn't let me touch her for quite a while and when she did she cuddled me for ages. She was in a dazed sort of state for about an hour but hasn't been too bad for the rest of the day.

I spoke to a lady at the British Epilepsy helpline today and she said they don't sound like absent seizures but after we'd spoken for a while she said she believes Olivia is having Complex Partial Seizures. She said we really need to be referred to an Epilepsy specialist and that our Paediatrician obviously isn't familiar with this as many of the things he said weren't relevant she said are relevant.

She said we need to go back to our Doctor and ask to be referred to a specialist which I'll do tomorrow morning.I feel like I learned more from my conversation with her than the last 5 weeks with the Paediatrician. She also said it sounds as though Olivia's having them at night too which Alex and I suspected.

The lady said we didn't need to have waited for an EEG to be diagnosed with Epilepsy if Olivia had seen a specialist already but as it's booked for tomorrow it's not too bad. She said it will unlikely tell us anything though.