21 November 2010

Well we upped Olivia's dose by 5mg twice daily and initially it looked like it had helped but we're noticing occurrences almost daily at the moment, mainly absences, confusing/forgetting words and falling over but a couple of days ago our childminder wasn't able to rouse her in the buggy (last year before her seizures were controlled her eyes would roll and then she would to pass out for a few minutes) and when she woke up she couldn't stand up for a while and was really unsteady after. Alex was there by then and all evening she said she was tired.


Yesterday she seemed really bright but today she's been awful since she woke up. 

When she woke up she went to see Grace then after a few minutes went and stood on the landing.  She kept shaking her toy rabbit but wouldn't respond to us calling her.  This went on for ages and then she laid curled in a ball on the floor and was groaning.  I told Alex I didn't think she was right and went and picked her up.

I sat her on our bed and asked if she was alright and she was talking but it was slowed down.  She talked some gibberish mid sentence then talked slow motion again.

Later in the day we went out for a meal and whilst she was sat with all the children at the table she had an obvious absence.

I think we need to up her dose again but at the same time I'm loath to do it.  I just keep hoping it'll go away which is stupid.

Donna